I recently got to ask the head of the Colorblind Society, Dr. Katherine Johnson, a melanoma survivor and the president of the nonprofit Colorblind Foundation, a leading advocate for the cause.
Johnson said she has a personal experience with pigmentation.
She said the first time she saw a pigmented image she thought it was an image of a pig with no pigmentation on it.
She added that it was a difficult time to live with her pigmentation as a result.
So I had to learn to be self-conscious about what I saw.
I learned to be very careful, and I had a great deal of support in terms of other people that are dealing with it.
We are all trying to find a balance between being proud of our melanoma and how we are dealing.
Johnson also said that the color blindness community needs to be more aware of the potential for pigments to be misidentified.
As more pigments are being researched and improved, she said, it is important for people to be educated about the types of pigments that might be used and how they might cause damage.
We also need to make sure people understand that they should be able to choose the pigment that they use.
She told me that pigments can actually work in combination to help people with color blindness.
Johnson added that colorblind people need to be taught about pigments, including pigments with pigment definitions, so they can understand that these are different pigments and different pigmentation treatments.
Johnson and her fellow Colorblind sufferers want to be sure that Colorblind people know about pigment definitions and that they are aware of pigment definitions.
It is important that Color blind people understand the difference between pigment definitions that have been published by the FDA, the American Color Institute, the National Association of Colorblind People and the National Institute of Allergy and Infectious Diseases, Johnson said.
The colorblind community should be aware of what pigment definitions are and when they are being used and be able do research on their efficacy and safety, Johnson told me.
For example, some pigment definitions contain the word “pigmented” and other pigment definitions have the word in the title.
In addition, some definitions do not specify the type of pigment that will be used.
Johnson asked Colorblind Colorblind readers to research these definitions.
Johnson has been on the Color Blind Foundation board of directors since 2012.
The Colorblind community needs better communication about pigmentation definitions, she told me, and the FDA needs to work more with colorblind colorblinds.
Johnson told Axios that the FDA has a responsibility to inform Colorblind color blind people of the types and efficacy of pigment-based treatments.
The FDA is also taking on the role of public health authority and helping to guide the development of color-blind treatments.
Colorblind patients should have the opportunity to make their own health decisions, she added.
Johnson did not mention that the Color Vision Association, a nonprofit colorblind advocacy group, has been working on a Colorblind Standard of Care, which would include the color-recognition requirements outlined in the FDA’s Colorblind Treatment Guide.
Johnson, who has melanoma, said that she believes that the government needs to do more to educate Colorblind consumers and that Color blindness sufferers need to know about pigment definitions.
I think the FDA is making the right decision by being more open and transparent and that the pigment-definition language should be included in the Color-Vision Standard of Health Care.
It will allow us to better protect ourselves and our patients.
Johnson spoke to Axios by phone from Washington, D.C., where she was in New York for a conference about the U.S. health care system and the fight against melanoma.
The Associated Press also is a partner with Axios.